SOUTHEASTERN VIRGINIA MULTIPLE MYELOMA SUPPORT GROUP
Member of the International Myeloma Foundation Network of Support Groups
Our Meeting Location:
We meet on most third Saturdays of the month from 10:00 AM to noon.
Patients, caregivers and friends share their knowledge and experiences on treatments, coping with side effects, medical insurance, participation in clinical trials, new scientific and clinical research and provide mutual support and encouragement.
We also invite experts to join us and share their knowledge.
Our mission is to be an ongoing resource
for information, support, shared experiences and hope for
persons with multiple myeloma, their family and
friends. We also have participants with amyloidosis
and Waldenstrom's macroglobulinemia.
Against Myeloma (VAM)
Multiple myeloma is a cancer of the cells
in the bone marrow that affects production of red cells,
white cells and stem cells. More specifically, it is an
uncontrolled growth of plasma cells which attack and
destroy bone. It is the 2nd largest of the blood cancers
affecting an estimated 750,000 people worldwide; in
industrialized countries it is growing in number and
affecting increasingly younger people. Although there is
no known cure, multiple myeloma is treatable and outcomes
are constantly improving. For more information go to
www.myeloma.org or www.philadelphia.myeloma.org/links/.
Amyloidosis is a rare disease that
occurs when substances called amyloid proteins build up in
your organs. Each year, over 3000 cases of amyloidosis are
diagnosed in the U.S. Amyloid is an abnormal protein
usually produced by cells in your bone marrow that can be
deposited in any tissue or organ. Amyloidosis can affect
different organs in different people, such
as the heart, kidneys, liver, spleen, nervous system
and gastrointestinal tract. The exact cause is
unknown, and currently there's no cure. However,
therapies are available to help manage symptoms
and limit the production of amyloid protein.
Research indicates that as many as 15% of myeloma patients
may eventually get amyloidosis. For more information
go to www.amyloidosis.org and www.amyloidosissupport.com.
Waldenstrom's Macroglobulinemia (WM) is a
slow-growing cancer that begins in the immune
system. Abnormal white blood cells in the bone
marrow make an abnormal protein called monoclonal
immunoglobulin M (IgM) that thickens the blood
plasma. This causes the symptoms of WM. WM is
a rare disease, with only about 1,500 cases per year in
the U.S. While the disease is incurable, it is
treatable. Because of its indolent nature, many
patients are able to lead active lives, and, when
treatment is required, may experience years of
symptom-free remission. For more information go to www.iwmf.com.
Join us as we strive to create hope and share experiences and information with patients, caregivers, family and friends through education, support and our personal experiences.